Go to the newly diagnosed page to find some basics about your condition, along with helpful tips, and important contraindications.
A Canada-specific list (finally!) of doctors and practitioners that know about EDS, HSD, PoTS, MCAS, Gastroparesis, and MALS.
Links to non-profits, charities, and doctor-run websites for information and other support.
Learn how to support your loved ones that are chronically ill, and find links to support groups for yourself.
Thousands of hours have gone into developing this directory that contains research on EDS and various Co-morbid conditions.
Parenting is hard when chronic illness(es) are involved! These resources are helpful for parents of chronically ill children, and parents that are ill themselves.
Who can I follow to learn more about EDS, hypermobility, and the spoonie life? Consider these social media influencers who focus on awareness, education, and advocacy.
Looking for somewhere to connect with others with EDS, Hypermobility, Dysautonomia, MCAS, Gastroparesis, MALS, or others with rare diseases?
Resources specific to mental health.
We have compiled fantastic tools for loved ones, doctors, practitioners, and patients. These handouts are important to bring to appointments!
Books
Want to learn more? There are some helpful books on EDS, HSD, PoTS, MCAS, MALS, Gastroparesis, and chronic illness that our community recommends.
Discounts
Interested in discounts? Consider these corporate partners who are offering discounts for assistive devices and more.
We need to support each other!
We have scoured through so many support groups, coming across different products that may be helpful to make life easier.