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Free Resources

Newly Diagnosed? Start Here!

Go to the newly diagnosed page to find some basics about your condition, along with helpful tips, and important contraindications.

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Medical Professional Directory

A Canada-specific list (finally!) of doctors and practitioners that know about EDS, HSD, PoTS, MCAS, Gastroparesis, and MALS.

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Links to Educational Pages

Links to non-profits, charities, and doctor-run websites for information and other support.

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Supporting Someone with Chronic Illness

Learn how to support your loved ones that are chronically ill, and find links to support groups for yourself.

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Research Directory

Thousands of hours have gone into developing this directory that contains research on EDS and various Co-morbid conditions.

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Parenting and Caregiving Resources

Parenting is hard when chronic illness(es) are involved! These resources are helpful for parents of chronically ill children, and parents that are ill themselves.

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Social Media Pages

Who can I follow to learn more about EDS, hypermobility, and the spoonie life? Consider these social media influencers who focus on awareness, education, and advocacy.

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Support Groups

Looking for somewhere to connect with others with EDS, Hypermobility, Dysautonomia, MCAS, Gastroparesis, MALS, or others with rare diseases?

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Mental Health

Resources specific to mental health.

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Handouts for Medical Services

We have compiled fantastic tools for loved ones, doctors, practitioners, and patients. These handouts are important to bring to appointments!

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Paid Resources

Books

Want to learn more? There are some helpful books on EDS, HSD, PoTS, MCAS, MALS, Gastroparesis, and chronic illness that our community recommends.

FOR CHILDREN, TEENS & PARENTS
FOR EVERYONE ELSE

Discounts

Interested in discounts? Consider these corporate partners who are offering discounts for assistive devices and more.

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Spoonie Run Businesses

We need to support each other!

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Product Recommendations

We have scoured through so many support groups, coming across different products that may be helpful to make life easier.

CLICK HERE

Webpage designed by Colleen Egli and Kimberly Czotter. Last updated Feb 28, 2022.

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