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MEDICAL PROFESSIONAL DIRECTORY (CANADA)

Educational Pages

Click on the condition below to be brought to a list of websites: non-profits, charities, and leading medical professionals.

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RARE DISEASES
CHRONIC ILLNESS AND DISABILITY
EHLERS-DANLOS SYNDROME AND HYPERMOBILITY
POTS AND DYSAUTONOMIA
MAST CELL RELATED DISORDERS
GASTROPARESIS
MEDIAN ARCUATE LIGAMENT SYNDROME
CSF LEAKS
CHIARI MALFORMATION AND CCI

RARE DISEASE

NON-PROFITS / CHARITIES

CANADIAN ORGANIZATION FOR RARE DISORDERS (CORD)
RARE DISEASES CLINICAL RESEARCH NETWORK
GLOBAL GENES - ALLIES IN RARE DISEASE
RARE DISEASE FOUNDATION (BC)
ORPHANET
PATIENT WORTHY - RARE PATIENT NEWS
RARE DISEASES NIH
RAREFEST
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CHRONIC ILLNESS AND DISABILITY

NON-PROFITS / CHARITIES

ABILITY TOOLBOX
ASE COMMUNITY FOUNDATION FOR BLACK CANADIANS W/ DISABILITIES
RESOURCE LIST FOR BLACK DISABLED LIVES
CANADIAN DISABILITY FOUNDATION (CDF)
CANADIAN FOUNDATION FOR PHYSICALLY DISABLED PERSONS (CFPDP)
CHOOSING WISELY - TEST RECCOMENDATIONS
HEALTH RISING
HIDDEN DISABILITY SYMBOL CANADA (HDSC)
HOPE AIR - REDUCED FLIGHT PRICES
INVISIBLE DISABILITIES
INVISIBLE DISABILITY PROJECT

BY REGION

BC ABORIGINAL NETWORK ON DISABILITY SOCIETY (BCANDS)
BC LIST OF DISABILITY ORGANIZATIONS
DISABILITY RESOURCES BY PROVINCE
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EHLERS-DANLOS AND HYPERMOBILITY

NON-PROFITS / CHARITIES

MEDICAL PROVIDERS

CHRONIC PAIN PARTNERS
EDSERS UNITED
EDS RESEARCH FOUNDATION
EDS TODAY
EHLERS-DANLOS NEWS
THE EHLERS-DANLOS SUPPORT UK
FIGHT vEDS
THE HMSA | THE HYPERMOBILITY SYNDROMES ASSOCIATION
THE ZEBRA NETWORK
STUFF THAT WORKS
vEDS MOVEMENT
ACTIFY - DR. MARCIA PERRETTO
CARING MEDICAL
EDS SOCIETY - SPECIALIZED LIST OF RESEARCHERS
JEANNE DI BON - ZEBRA CLUB
LILIAN HOLME - HYPERMOBILITY DOCTOR
LINDA BLUESTEIN - HYPERMOBILITY MD
HYPERMOBILITY CLINIC
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POTS AND DYSAUTONOMIA

NON-PROFITS / CHARITIES

MEDICAL PROVIDERS

DINET - DYSAUTONOMIA INFORMATION NETWORK
DYSAUTONOMIA INTERNATIONAL
DYSAUTONOMIA PROJECT
DYSAUTONOMIA SUPPORT NETWORK
DYSAUTONOMIA YOUTH NETWORK OF AMERICA
POTS UK
STANDING UP TO POTS
SYNCOPE TRUST & REFLEX ANOXIC SEIZURES (STARS)
STUFF THAT WORKS
CARING MEDICAL
COMPLETE CONCUSSION MANAGEMENT
DR RAJ SATISH (CALGARY)
DR SANJAY GUPTA (USA)
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MAST CELL RELATED DISORDERS

NON-PROFITS / CHARITIES

MEDICAL PROVIDERS

LYME DISEASE
MAST CELL ACTION
MAST CELL HOPE
THE MAST CELL DISEASE SOCIETY
MAST CELL KNOWLEDGE
THE MAST CELL RESEARCH INSTITUTE
MASTOCYTOSIS CANADA
STUFF THAT WORKS
SUPER T'S MAST CELL FOUNDATION
UK MASTO
DR. BETH O'HARA - FUNCTIONAL NATUROPATH
DR. HAGMEYER - HOLISTIC AND FUNCTIONAL MEDICINE
DR. JOHN GANNAGE - MD
MAST CELLS UNITED - AMBER WALKER, PT, DPT, CFMP, CNPT
DR. THEOHARIDES
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GASTROPARESIS

NON-PROFITS / CHARITIES

CANADIAN DIGESTIVE HEALTH FOUNDATION (CDHF)
INTERNATIONAL FOUNDATION FOR FUNCTIONAL GI DISORDERS (IFFGD)
GASTROPARESIS AUSTRALIA
OLEY FOUNDATION (IV NUTRITION AND TUBE FEEDING INFO)
GASTROPARESIS PATIENT ASSOCIATION FOR CURES AND TREATMENTS (G-PACT)
GI SOCIETY - CANADIAN SOCIETY OF INTESINAL RESEARCH
STUFF THAT WORKS
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MEDIAN ARCUATE LIGAMENT SYNDROME

NON-PROFITS / CHARITIES

MEDICAL PROVIDERS

NATIONAL MALS FOUNDATION (USA)
MALS AWARENESS
STUFF THAT WORKS
OLEY FOUNDATION (IV NUTRITION AND TUBE FEEDING INFO)
DANNY SHOUHEAD
UNIVERSITY OF TEXAS MALS HEALTH TEAM
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CSF LEAKS

NON-PROFITS / CHARITIES

MEDICAL PROVIDERS

BRAIN CANADA FOUNDATION
CSF LEAK ASSOCIATION
STUFF THAT WORKS
SPINAL CSF LEAK CANADA
SPINAL CSF LEAK FOUNDATION
COMPLETE CONCUSSION MANAGEMENT
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CHIARI MALFORMATION AND CCI

NON-PROFITS / CHARITIES

MEDICAL PROVIDERS

AMERICAN SYRINGOMYELIA & CHIARI ALLIANCE PROJECT (ASAP)
BOBBY JONES CHIARI FOUNDATION
BRAIN CANADA FOUNDATION
CHIARI BRIDGES
THE CHIARI PROJECT
CONQUER CHIARI
CRANIOCERVICAL FOUNDATION
STUFF THAT WORKS
WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE
CARING MEDICAL - CCI
CENTENO-SCHULTZ CLINIC - CCI
CHIARI CARE
COMPLETE CONCUSSION MANAGEMENT
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Resources gathered and webpage designed by Kimberly Czotter. Last updated Feb 28, 2022.

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