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Get Involved

With us

Donate or Help Fundraise.

SEARCH WITH BING [FREE]
DONATE WITH PAYPAL
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OUR MERCH STORE
OUR MEDICAL BRACELETS
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Submit a Story.

Have a story about EDS you'd like to share to spread awareness? Please click below!

EMAIL US

Volunteer.

LEARN MORE

APPLY HERE:

GENERAL APPLICATION
RESEARCH APPLICATION


In the community

Participate in Research.

STUDIES FOR POTS PATIENTS
POTS SURVEY
EDS AND PREGNANCY SURVEY
GENERAL STUDY DATABASE
RARE PATIENT VOICE (PAID)

Specific Training.

No CME CREDIT

ASAP LEARN POINTS PROGRAM (CHIARI)
EDS ECHO ADVOCACY PROGRAM
EDS ECHO COMMUNITY LEADERS AND EDUCATORS PROGRAM
INTRODUCTION TO AUTONOMIC MEDICINE COURSE
MONTHLY EDS WEBINARS BY HEALTHCARE PROFESSIONALS

For Healthcare Providers (CME CREDIT)

EDS ECHO CLINICIAN PROGRAMS
EDS CONTINUING EDUCATION PROGRAMS (DRS, NURSES, ETC)
MAST CELL CLINICIAN PROGRAMS

Conferences.

DYSAUTONOMIA INTERNATIONAL (ANNUAL)
ILC FOUNDATION (EDS)
EDS CONFERENCES (MULTIPLE PER YEAR)
VEDS CONFERENCES
GI DISORDERS CONFERENCES
NEUROGASTROENTEROLOGY AND MOITLITY CONFERENCES
RARE DISEASES (VARIOUS TOPICS)

Train Med Students as a Volunteer Patient.

VOLUNTEER PATIENT PROGRAM CALGARY (AB)
PATIENT IMMERSION EXPERIENCE EDMONTON (AB)
VOLUNTEER PATIENT PROGRAM AT UBC (BC)
FIRST PATIENT PROGRAM VANCOUVER ISLAND (BC)
VOLUNTEER PATIENT PROGRAM DALHOUSIE UNI (ST JOHN, NB)

Patient Care Advisory Board.

CALGARY (AB)
PATIENT PARTNER (BC)
FRASER HEALTH (BC)

Activism Days

February

  • Median Arcuate Ligament Syndrome Month

  • Rare Disease Awareness Day (Feb 28th)

April

  • IBS Awareness Month

May

  • Ehlers-Danlos Awareness Month

  • ME/CFS Awareness Day (May 12th)

August

  • Gastroparesis Awareness Month

September

  • Chiari Malformation Awareness Month

October

  • Dysautonomia Awareness Month

  • Disability Awareness Month

  • Invisible Disabilities Week (third week in Oct)

  • MCAS Awareness Day (Oct 20th)

November

  • National Pain Awareness Week (second week in Nov)

  • World Antibiotic Awareness Week (third week in Nov)

December

  • Women's Brain Health Day (Dec 2nd)

  • Human Rights Day (Dec 10th)

Resources gathered and webpage designed by Kimberly Czotter. Last updated Feb 28, 2022.

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