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Frequently Asked Questions: Ehlers-Danlos Syndrome and Hypermobility

DIAGNOSIS QUESTIONS:

NEWLY DIAGNOSED QUESTIONS:

Why is it important to get diagnosed?
What kind of Dr can diagnose EDS?
Where can I find a Dr in...?
How do I prepare for medical appointments?
What information should I bring to my Dr?
What kind of birth control is good for EDSers?
What do you wish you knew when you were first diagnosed?
What kind of birth control is good for EDSers?
What kind of birth control is good for EDSers?
What kind of birth control is good for EDSers?
What kind of birth control is good for EDSers?

MEDICATION & TREATMENT QUESTIONS:

NUTRITION QUESTIONS:

What kind of birth control is good for EDSers?
Best pain relief meds? Issues with taking them long term?
What meds should we avoid?
Why doesn't anesthesia work well with EDSers?
Can we use botox for migraines?
Can we get eye surgery (ex laser eye surgery)?
Why does it seem like all of us are low in vitamin D?
What supplements help EDS?
Does collagen supplementation help with EDS?
Are there dietary recommendations for EDS?
What kind of birth control is good for EDSers?
What kind of birth control is good for EDSers?

DISLOCATIONS/SUBLUX QUESTIONS:

PRODUCT-RELATED QUESTIONS:

How do you identify a dislocation vs subluxation?
Is a subluxing larynx normal?
Best ways to sleep to avoid subluxing/ dislocations?
Best kind of braces? (knee, back, ankles)
What kind of birth control is good for EDSers?
What kind of birth control is good for EDSers?
Best kind of braces? (knee, back, ankles)
Are there any good books that explain EDS?
What kind of birth control is good for EDSers?
What kind of birth control is good for EDSers?
What kind of birth control is good for EDSers?
What kind of birth control is good for EDSers?

LIFESTYLE-RELATED QUESTIONS:

PREGNANCY/CONCEPTION QUESTIONS:

Is it safe to get tattoos?
Sports activities safe for EDS?
Is it difficult to get pregnant with EDS?
What kind of birth control is good for EDSers?
What are common issues with pregnancy?
What are common issues with birth?
Should I have a child when I have EDS?
Will I pass on EDS to my children?

COMMON ISSUES QUESTIONS:

What are common issues with teeth?
Do all people with EDS have long fingers?
Why do my feet & hands turn purple? Is raynaud’s common?
Is autism common with EDS?
Is scoliosis common in EDS? What about kyphosis/lordosis?
Does anyone else’s fingers do this?
Are gallbladder issues common with EDS?
Is hair loss part of EDS?
Do we all have sleeping problems?
I have a mitral valve prolapse - is this a normal part of EDS?
Does EDS affect eyes? How?
Are webbed toes and fingers part of EDS?

Q: What kind of birth control is good for EDSers?

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